{"id":19121,"date":"2011-08-24T09:03:44","date_gmt":"2011-08-24T13:03:44","guid":{"rendered":"http:\/\/asweetlife.org\/?p=19121"},"modified":"2016-01-06T05:10:33","modified_gmt":"2016-01-06T10:10:33","slug":"friends-for-life-talking-to-children-with-diabetes-founder-jeff-hitchcock","status":"publish","type":"post","link":"https:\/\/asweetlife.org\/?p=19121","title":{"rendered":"Friends For Life: Talking to Children With Diabetes Founder Jeff Hitchcock"},"content":{"rendered":"<p dir=\"LTR\" style=\"text-align: justify;\"><a href=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Friends-for-Life-2011.jpg\" rel=\"mfp\"><img decoding=\"async\" class=\"alignleft size-medium wp-image-19149 lazyload\" title=\"Friends for Life 2011\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Friends-for-Life-2011-300x116.jpg\" alt=\"\" width=\"300\" height=\"116\" \/><\/a>This year&#8217;s <a href=\"http:\/\/www.childrenwithdiabetes.com\/activities\/orlando2011\/report.htm\" target=\"_blank\">Children With Diabetes Friends For Life conference<\/a> was the organization&#8217;s 12th annual get-together in Orlando, Florida.\u00a0 It drew hundreds of families, adults and children with diabetes, doctors, experts, and even celebrities with diabetes like singer Crystal Bowersox.<\/p>\n<p dir=\"LTR\" style=\"text-align: justify;\">I&#8217;ve read many blog posts about how wonderful the conference was, and I&#8217;m not surprised. But I am jealous.\u00a0 I was diagnosed with type 1 diabetes in 1995 at the age of nine.\u00a0 Growing up, I did my best to ignore diabetes and resisted all attempts by my parents and doctors to introduce me to other people with diabetes.\u00a0 So I have never been to FFL, and do not know first-hand about the &#8220;magical feeling of belonging&#8221; that prevails at the conference.<\/p>\n<p dir=\"LTR\" style=\"text-align: justify;\">Now, older and wiser, I would love to go, especially since <a href=\"http:\/\/www.childrenwithdiabetes.com\/\" target=\"_blank\">Children With Diabetes<\/a> has made a strong effort to recognize and serve all the Now-Adults With Diabetes. Next year, I hope I can attend in person.\u00a0 Until then, I will have to settle for living vicariously through the behind-the-scenes stories that Jeff Hitchcock, founder of Children With Diabetes and Parent-of-a-Diabetic Extraordinaire, was so kind to share with us in this interview.<\/p>\n<p style=\"text-align: justify;\"><em><strong>When and why did you start Children With Diabetes? How long before you were putting together conferences?<\/strong><\/em><br \/>\nI started CWD in June 1995 to help my daughter Marissa meet other kids with type 1 diabetes and to share the experiences my wife Brenda and I had in raising a child with type 1 diabetes. Back then, there were very few web sites related to diabetes, and CWD was the first to focus on parents and kids.<\/p>\n<figure id=\"attachment_19130\" aria-describedby=\"caption-attachment-19130\" style=\"width: 350px\" class=\"wp-caption alignright\"><a href=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Jeff-Hitchcock-Laura-Billetdeaux.jpg\" rel=\"mfp\"><img decoding=\"async\" class=\"size-full wp-image-19130  lazyload\" title=\"Jeff Hitchcock &amp; Laura Billetdeaux\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Jeff-Hitchcock-Laura-Billetdeaux.jpg\" alt=\"Jeff Hitchcock &amp; Laura Billetdeaux\" width=\"350\" height=\"232\" data-sizes=\"auto\" data-srcset=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Jeff-Hitchcock-Laura-Billetdeaux.jpg 350w, https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Jeff-Hitchcock-Laura-Billetdeaux-300x199.jpg 300w\" sizes=\"(max-width: 350px) 100vw, 350px\" \/><\/a><figcaption id=\"caption-attachment-19130\" class=\"wp-caption-text\">Jeff Hitchcock &amp; Laura Billetdeaux<\/figcaption><\/figure>\n<p style=\"text-align: justify;\">In late 1999, Laura Billetdeaux, a mom who used CWD\u2019s parents support mailing list, sent a note to that list asking who would like to join her for a vacation in Orlando in June 2000. In very short order, lots of people said they would come, and in June of 2000, 110 families \u2013 550 people \u2013 met in Orlando for the very first CWD event. Laura took charge of asking families what they wanted for our next event, and that became the basis for our Friends for Life conferences. Today, Laura is CWD\u2019s Vice President for Education and Programming and runs all CWD events.<\/p>\n<p style=\"text-align: justify;\"><em><strong>What&#8217;s the goal of the CWD Friends For Life conference?<\/strong><\/em><br \/>\nOur goal for Friends for Life is to offer families who attend a chance to meet others like themselves, to share their experiences and learn what works, to learn about diabetes care strategies and the latest research from the best clinicians and researchers, and to have an amazing time.<br \/>\nFamilies attending CWD\u2019s FFL come for many reasons. This year we ran a survey after Friends for Life, and when asked about why they came, families responded:<\/p>\n<ul>\n<li>See friends \u2013 34%<\/li>\n<li>Learn about new products \u2013 75%<\/li>\n<li>Attend sessions to learn about diabetes care and research \u2013 90%<\/li>\n<li>We go every year \u2013 31%<\/li>\n<\/ul>\n<p style=\"text-align: justify;\"><em><strong>How do you select the activities and the speakers? How structured is the conference? Is there a lot of free time?<\/strong><\/em><br \/>\nI have had the great fortune over the years to attend many scientific conferences about diabetes, where I have met many incredible clinicians and researchers. I invite those that present topics that I think are of interest to families, and who are great speakers, to come to Friends for Life to present.<\/p>\n<p style=\"text-align: justify;\">Friends for Life is pretty structured, which makes sense when you realize that over 3,200 people attend. Sessions run on time, and that includes sessions for all age groups. Meals and snacks do too. There is free time at the end of the day and in the evenings, and that\u2019s when people find time to connect or reconnect with their CWD family.<\/p>\n<figure id=\"attachment_19145\" aria-describedby=\"caption-attachment-19145\" style=\"width: 570px\" class=\"wp-caption aligncenter\"><a href=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Crystal-Bowersox-at-FFL-2011.jpg\" rel=\"mfp\"><img decoding=\"async\" class=\"size-full wp-image-19145 lazyload\" title=\"Crystal Bowersox at FFL 2011\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Crystal-Bowersox-at-FFL-2011.jpg\" alt=\"Crystal Bowersox Live at FFL 2011\" width=\"570\" height=\"347\" data-sizes=\"auto\" data-srcset=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Crystal-Bowersox-at-FFL-2011.jpg 570w, https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Crystal-Bowersox-at-FFL-2011-300x183.jpg 300w\" sizes=\"(max-width: 570px) 100vw, 570px\" \/><\/a><figcaption id=\"caption-attachment-19145\" class=\"wp-caption-text\">Crystal Bowersox Live at FFL 2011<\/figcaption><\/figure>\n<p style=\"text-align: justify;\"><em><strong>What were some of your favorite sessions or activities this year?<\/strong><\/em><br \/>\nIt\u2019s hard to pick one session over another, since we select all the sessions with great care and consideration. I did, however, thoroughly enjoy the opening keynote on Thursday on the importance of humor presented by Richard Rubin and Oliver Double. Dr. Rubin has<br \/>\npresented for years and helps put much of the challenges of living with type 1 into perspective. Oliver was new to Friends for Life Orlando, after having done a phenomenal job at our 2010 Friends for Life UK conference. Oliver\u2019s Think like a Pancreas song pretty much summed up our lives.<br \/>\nAlso new this year was a Teen Driving Program, which taught new drivers on-the-road skills that can help reduce the risk of automobile accidents. This is important in light of recent studies that show people with type 1 have a higher risk of car crashes than people without type 1.<\/p>\n<p style=\"text-align: justify;\"><em><strong><a href=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Quilt-for-Life-FFL-2011.jpg\" rel=\"mfp\"><img decoding=\"async\" class=\"alignright size-full wp-image-19157 lazyload\" title=\"Quilt for Life - FFL 2011\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Quilt-for-Life-FFL-2011.jpg\" alt=\"\" width=\"350\" height=\"234\" data-sizes=\"auto\" data-srcset=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Quilt-for-Life-FFL-2011.jpg 350w, https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Quilt-for-Life-FFL-2011-300x201.jpg 300w\" sizes=\"(max-width: 350px) 100vw, 350px\" \/><\/a>From what you observed, what were some of the favorite sessions of the kids this year?<\/strong><\/em><br \/>\n\u201cKids\u201d covers everyone from infants to teens, and the range of sessions reflects that wide age range. Younger kids always enjoy Jackson, the dog with diabetes, who loves kids and happily sits still for blood sugar checks. Tweens and teens spend time with our special guests \u2013 and this year that included Kendall Simmons, a former NFL player who spent 11 years as an offensive lineman for the Pittsburgh Steelers, including earning two Super Bowl rings while playing with type 1 diabetes. Teens also have sessions we call \u201cGirl Talk\u201d and \u201cBoy Talk,\u201d which gives them a chance to share and discuss many of the challenges of growing up with type 1 diabetes in a very supportive group. But I think the most important \u201csession\u201d for kids is not a session at all \u2013 it\u2019s simply the chance to be together with their special FFL friends.<\/p>\n<p style=\"text-align: justify;\"><strong><em>Who is the target audience of the conference?\u00a0<\/em><\/strong><br \/>\nFriends for Life is for families living with type 1 diabetes \u2013 and that includes moms, dads, kids with type 1 diabetes and their siblings, adults with type 1 and their families, grandparents, and friends.<\/p>\n<p style=\"text-align: justify;\"><em><strong>Speaking for myself, I was a stubborn and resistant teenager, irrespective of diabetes. How do you engage teenagers at the conference? What difficulties do you see in addressing teenagers?<\/strong><\/em><br \/>\nCWD\u2019s teen faculty, led by Natalie Bellini, Jim Vail, and Marissa Hitchcock \u2013 all of whom have type 1 diabetes &#8212; have created an incredibly dynamic and supportive environment for teens, both with and without diabetes. This year, over 300 teens participated in sessions on Thursday and the \u201cday at the park\u201d on Friday, followed by Friday evening\u2019s Teen Dinner Dance. Much of the teen program focuses on keeping teens engaged in their care, knowing full well the challenge of caring for type 1 diabetes during adolescence. We want teens to know the science of type 1 so they can make good choices, as well as to make friends who can help them throughout the year. Judging by the river of tears on the final day, it\u2019s safe to say that the teens have the same incredible experience as everyone.<\/p>\n<p style=\"text-align: justify;\"><img decoding=\"async\" class=\"size-full wp-image-19140 aligncenter lazyload\" title=\"Teens at Friends For Life\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Teens-at-Friends-For-Life.jpg\" alt=\"Teens at Friends For Life Orlando - 2011\" width=\"570\" height=\"378\" data-sizes=\"auto\" data-srcset=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Teens-at-Friends-For-Life.jpg 570w, https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Teens-at-Friends-For-Life-300x199.jpg 300w\" sizes=\"(max-width: 570px) 100vw, 570px\" \/><\/p>\n<p style=\"text-align: justify;\"><em><strong>We know pulling off such a big conference isn&#8217;t easy. What&#8217;s it like behind the scenes? Preparation? Do you have medical staff on duty? Do you have special meals?<\/strong><\/em><br \/>\nCWD\u2019s Laura Billetdeaux and Mike Schurig work throughout the year to ensure that Friends for Life is a success. Helping them are key CWD conference staff members who oversee registration, the exhibit hall, our computer and audio-visual needs, every youth age group from teens to childcare, as well as an army of volunteers who help the staff members. This incredible team takes care of everything that makes Friends for Life a magical experience.<br \/>\nEvery youth group has at least one full time nurse as part of their team. Most groups have several. We want families to know that their kids are in good hands, and that we understand type 1 diabetes.<\/p>\n<p style=\"text-align: justify;\">Meals at Friends for Life are often part of the magic \u2013 everything is carb counted and labeled, thanks to CWD\u2019s Mike Schurig. Plus, we have a separate gluten free area for those who have celiac disease.<\/p>\n<p style=\"text-align: justify;\"><em><strong>What made you decide to widen the circle this year and include adults with type 1 diabetes? We know from blog posts that the adults had a wonderful time. Was it successful from your point of view?<\/strong><\/em><\/p>\n<p style=\"text-align: justify;\">Quite simply, Marissa and Sam, my daughter and Laura\u2019s son, are now adults with diabetes, as are many of the kids who joined us at the first CWD conference in June 2000. It\u2019s important for Friends for Life to remain relevant to them. Also, through the growth in the online diabetes community, including blogs and other social networking sites, Laura and I have had the chance to meet a lot of grown-ups with type 1 diabetes, and we both want to be sure that Friends for Life is there for them too. So this year we added sessions specifically for adults with type 1 diabetes, and we expect to continue to do so in the years ahead. Based on the many blog posts from those who attended, I would say that it was very successful.<\/p>\n<p style=\"text-align: justify;\"><em><strong>Who funds the conference? Are there scholarships for children whose families can&#8217;t afford it?<\/strong><\/em><br \/>\nFriends for Life, like all CWD conferences, is made possible through the generous support of many corporate sponsors. (The entire list is on our web site.) We could not hold Friends for Life without them.<br \/>\nScholarships are available through the <a href=\"http:\/\/www.diabetesscholars.org\">Diabetes Scholars Foundation<\/a>.<\/p>\n<p style=\"text-align: justify;\"><a href=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/The-exhibit-hall1.jpg\" rel=\"mfp\"><img decoding=\"async\" class=\"aligncenter size-full wp-image-19143 lazyload\" title=\"The exhibit hall1\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/The-exhibit-hall1.jpg\" alt=\"\" width=\"570\" height=\"238\" data-sizes=\"auto\" data-srcset=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/The-exhibit-hall1.jpg 570w, https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/The-exhibit-hall1-300x125.jpg 300w\" sizes=\"(max-width: 570px) 100vw, 570px\" \/><\/a><\/p>\n<p style=\"text-align: justify;\"><em><strong>What do you hope people take away from the conference?<\/strong><\/em><br \/>\nWhile never wanting to understate the challenge of living with type 1 diabetes, I hope that families who come to Friends for Life leave with a sense that life with type 1 diabetes is so much better today than it was even just a few years ago, that they have friends they never realized they had who are always there for them, and that our kids \u2013 and grown-ups \u2013 can and do live wonderful lives.<\/p>\n<p style=\"text-align: justify;\"><em><strong>What do you take away from the conference?<\/strong><\/em><br \/>\nHappiness.<\/p>\n<p style=\"text-align: justify;\"><em><strong>What can we expect for next year\u2019s conference? How early do you start planning the sessions?<\/strong><\/em><br \/>\nWe begin planning the next conference almost while the current conference is underway. For 2012, families can expect another great Friends for Life conference, though the sessions will be organized a bit differently because July 4th is on a Wednesday, the day we normally start the conference. For 2012, the exhibit hall hours will be different and will extend into the weekend.<\/p>\n<p style=\"text-align: justify;\"><em><strong>If you could wave your magic wand and have anyone or anything come to next year\u2019s conference, what sort of session would you design?<\/strong><\/em><br \/>\nWe\u2019re working on some great things for 2012, but it\u2019s too early to share.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: justify;\"><em>*All photos courtesy of \u00a0<a href=\"http:\/\/www.childrenwithdiabetes.com\/\" target=\"_blank\">Children With Diabetes<\/a><\/em><\/p>\n<p><img decoding=\"async\" class=\"alignleft size-full wp-image-19152 lazyload\" title=\"Children With DIabetes Logo\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2011\/08\/Children-With-DIabetes-Logo.jpg\" alt=\"Children With DIabetes Logo\" width=\"250\" height=\"91\" \/><\/p>\n<p><em><br \/>\n<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>This year we added sessions specifically for adults with type 1 diabetes, and we expect to continue to do so&#8230;<\/p>\n","protected":false},"author":16,"featured_media":19148,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[1429],"tags":[20],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.9 (Yoast SEO v22.9) - 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