{"id":30189,"date":"2012-09-04T09:13:21","date_gmt":"2012-09-04T13:13:21","guid":{"rendered":"http:\/\/asweetlife.org\/?p=30189"},"modified":"2016-01-08T07:35:12","modified_gmt":"2016-01-08T12:35:12","slug":"d-dad-volunteers-for-life-for-a-child","status":"publish","type":"post","link":"https:\/\/asweetlife.org\/?p=30189","title":{"rendered":"Understanding Privilege: D-Dad Volunteers for Life for a Child"},"content":{"rendered":"<p style=\"text-align: center;\"><a href=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Deam-Trust-India.jpg\" rel=\"mfp\"><img decoding=\"async\" class=\" wp-image-30207 aligncenter lazyload\" title=\"Deam Trust - India\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Deam-Trust-India.jpg\" alt=\"Life for a Child - Deam Trust - India\" width=\"600\" height=\"399\" data-sizes=\"auto\" data-srcset=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Deam-Trust-India.jpg 600w, https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Deam-Trust-India-300x200.jpg 300w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/a><\/p>\n<p style=\"text-align: justify;\">After my two-year old son Sacha was diagnosed with type 1 diabetes in early 2009, months passed before\u00a0 the fog of fear and uncertainty began\u00a0 to lift. By fall 2009, however, I was able to think outside of my own family and our struggle, and I\u00a0 wondered: what did pediatric diabetes management look like in the developing world? My wife and I had worked for years in international human rights and development, and had often traveled to countries where the medical system struggled. It was hard for me to even begin to think about what type 1 diabetes management might look like in resource-poor countries.<\/p>\n<p style=\"text-align: justify;\">The night\u00a0 Sacha had a severe hypoglycemic episode, we used our glucometer, test strips, glucagon injection and cellphone to diagnose, treat and call for help. Paramedics swarmed the house, and our endocrinologist\u2019s soothing voice talked us down. I went back to sleep that night feeling relieved and grateful for the tools and care we had. But, how, I wondered, did parents deal with similar incidents in poor countries? Were insulin, needles, test strips and glucagon readily available? What about middle-of-the night expert advice?<\/p>\n<p style=\"text-align: justify;\">I called our local JDRF and Canadian Diabetes Association, confident they would have some kind of project we could help support.<\/p>\n<p style=\"text-align: justify;\">To my surprise, however, neither organization had any idea. \u201cWe don\u2019t do that kind of thing,\u201d they said, and from their tone, I suspected I was one of the first in recent memory to have asked<\/p>\n<p style=\"text-align: justify;\">Confused, I called the American Diabetes Association and U.S.-based JDRF; surely, I thought, someone in the U.S. diabetes community would have some kind of program. Again, I drew a blank.<\/p>\n<p style=\"text-align: justify;\">After a few hours on the web, however, I discovered a handful of groups devoted to type 1 diabetes\u00a0 in the developing world. I found aparticularly impressive website run by the Australia-based <a href=\"http:\/\/www.idf.org\/lifeforachild\" target=\"_blank\">Life for a Child<\/a> (LFAC), an affiliate of the Brussels-based International Diabetes Federation.<\/p>\n<p style=\"text-align: justify;\">Acting on impulse, I sent its director, Dr. Graham Ogle, a spontaneous, nighttime email, one I thought I might\u00a0 regret. \u201cI\u2019d like to donate money,\u201d I wrote, \u201cbut would also like to help out in other ways. What can I do?\u201d<\/p>\n<p style=\"text-align: justify;\">The ever-courteous Dr. Ogle wrote back a few days later; ever since, my life has changed for the better.<\/p>\n<p style=\"text-align: justify;\">Dr. Ogle initially wanted to work with my wife, who then worked as a senior development officer at a Canadian donor agency. As an academic, however, I had a more flexible schedule, so he suggested that I visit a few LFAC supported clinics. The group sends donations of insulin, supplies and money worldwide, but Dr. Ogle and his small staff can\u2019t visit all of their partners as frequently as they might like.<\/p>\n<p style=\"text-align: justify;\">My first LFAC volunteer trip was in 2010 to Nagpur, located in the exact center of India. I traveled with two endocrinologists from Sacha\u2019s clinic at the Children&#8217;s Hospital of Eastern Ontario,\u00a0Drs. Alexandra Ahmet and Caroline Zuijdwijk.<\/p>\n<div id='gallery-1' class='gallery galleryid-30189 gallery-columns-1 gallery-size-thumbnail'><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30201'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"Buffalo in Nagpur\" aria-describedby=\"gallery-1-30201\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Buffalo-in-Nagpur-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-30201'>\n\t\t\t\tBuffalo in Nagpur\n\t\t\t\t<\/figcaption><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30207'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Deam-Trust-India-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30197'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"\" aria-describedby=\"gallery-1-30197\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Diabetes-Clinic-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-30197'>\n\t\t\t\tDiabetes Clinic \n\t\t\t\t<\/figcaption><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30205'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"\" aria-describedby=\"gallery-1-30205\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Dr.-Alex-Ahmet-left-and-Dr.-Caroline-Zuijdwijk-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-30205'>\n\t\t\t\tDr. Alex Ahmet, left, and Dr. Caroline Zuijdwijk\n\t\t\t\t<\/figcaption><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30200'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"\" aria-describedby=\"gallery-1-30200\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Dr.-Sharad-Pendsey-runs-the-Dream-Trust-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-30200'>\n\t\t\t\tDr. Sharad Pendsey runs the Dream Trust\n\t\t\t\t<\/figcaption><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30204'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"\" aria-describedby=\"gallery-1-30204\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Keep-Insulin-Cool-India-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-30204'>\n\t\t\t\tKeep Insulin Cool \n\t\t\t\t<\/figcaption><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30202'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"\" aria-describedby=\"gallery-1-30202\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/LFC-sponsored-Manish-aged-20-lives-on-the-street.-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-30202'>\n\t\t\t\tJames with LFC sponsored Manish, aged 20, lives on the street.\n\t\t\t\t<\/figcaption><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30203'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"\" aria-describedby=\"gallery-1-30203\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Rajat-aged-16-is-stunted-due-to-early-insulin-deprivation-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-30203'>\n\t\t\t\tRajat, aged 16, is stunted due to early insulin deprivation\n\t\t\t\t<\/figcaption><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30206'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"\" aria-describedby=\"gallery-1-30206\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Ratnamala-aged-25-was-diagnosed-in-1997.-She-cannot-get-married-and-fears-being-a-burden-to-her-family.-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-30206'>\n\t\t\t\tRatnamala, aged 25, was diagnosed in 1997. She cannot get married, and fears being a burden to her family.\n\t\t\t\t<\/figcaption><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/asweetlife.org\/?attachment_id=30209'><img decoding=\"async\" width=\"150\" height=\"150\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" class=\"attachment-thumbnail size-thumbnail thb-lazyload lazyload\" alt=\"\" aria-describedby=\"gallery-1-30209\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Shrutika-Sable-aged-8-and-her-mother.-She-is-sponsored-by-the-Naughton-Rons-of-Ottawa.-150x150.jpg\" data-sizes=\"auto\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-30209'>\n\t\t\t\tShrutika Sable, aged 8, and her mother. She is sponsored by the Naughton-Rons of Ottawa.\n\t\t\t\t<\/figcaption><\/figure>\n\t\t<\/div>\n\n<p style=\"text-align: justify;\">We met dozens of children cared for by Dr. Sharad Pendsey, a private doctor\u00a0who created the Dream Trust, an Indian medical charity, over fifteen years ago. He has tended to their diabetes as well as he can, handing out free insulin and syringes to some 500 kids and youth every three months.<\/p>\n<p style=\"text-align: justify;\">Electricity and refrigerators are in short supply, so patients use small clay pots for insulin storage.\u00a0\u00a0 To keep them cool, families bury the pots in the ground, or cover them in water. India\u2019s summertime heat is searing, but somehow, the clay pots seem to work.<\/p>\n<p style=\"text-align: justify;\">Dr. Pendsey and his staff track the patients as best they can, and offer a bit of money to help the poorest kids attend school. There are no funds for blood glucose meters or strips, however, so Pendsey guesstimates insulin doses by age and weight. Preliminary results from a baseline study led by Drs. Zuijdwijk, Ahmet and Pendsey suggest suggests that average A1Cs are very high.<\/p>\n<p style=\"text-align: justify;\">LFAC supports about 100 of the <a href=\"http:\/\/www.dreamtrust.org\/\" target=\"_blank\">Dream Trust\u2019s<\/a> patients, and is always trying to do more. Recently, the Australian charity negotiated a deal with Nipro Diagnostics for cheap strips; with a bit of luck, Pendsey\u2019s patients will soon get a meter and two test strips per day.<\/p>\n<p style=\"text-align: justify;\">There is no money for lancets, however, and it\u2019s not clear that Pendsey or anyone else can make accurate insulin adjustments on such a low number of tests. In any case, most patients can\u2019t call the clinic, and only make it in to Pendsey\u2019s office once every three months. Under these conditions, it\u2019s unclear how much their A1Cs can be improved.<\/p>\n<p style=\"text-align: justify;\">My colleagues and I hope to soon begin evaluating the Nipro gifts\u2019 impact. I desperately hope that A1Cs improve; otherwise, many of Dr. Pendsey\u2019s patients will soon begin experiencing complications. There is no question that Dr. Pendsey saved the lives of these 500 kids and youth. Will they grow up and lead healthy lives, however, or will they soon start suffering from a whole host of diabetes-related diseases?<\/p>\n<p style=\"text-align: justify;\">LFAC is now supporting over 10,000 kids with type 1 diabetes worldwide, and its resources are stretched paper-thin. Dr. Pendsey and other LFAC partners do the best they can, leveraging other donations and using their own money.<\/p>\n<p style=\"text-align: justify;\">When I\u00a0 returned to Canada, my friends and I began raising money for Dr. Pendsey\u2019s patients. In central India, 350 dollars pays for a year\u2019s worth of insulin and syringes, and our small group of type 1 diabetes parents, doctors and hospital staff have managed to send about $5,000 each year to Dr. Pendsey\u2019s Trust.<\/p>\n<p style=\"text-align: justify;\">Since\u00a0 I first connected with Dr. Ogle , I\u2019ve volunteered for Life for a Child elsewhere in India, Mexico, and Morocco. Each visit has made me love the organization and its work even more. In early 2011, I returned to the northern Indian city of Haridwar, and in 2011-12, worked with a group of devoted Mexican diabetes associations to build a new, LFAC supported network throughout the country. In a few weeks, I\u2019ll be meeting another LFAC partner in Rabat, Morocco.<\/p>\n<p style=\"text-align: justify;\">Working with LFAC has made a world of difference to me. When my son was diagnosed I was depressed and scared. I realized that our lives had changed irrevocably; no matter what happened I would always be deeply anxious about Sacha\u2019s health, every waking hour, for the rest of my life.<\/p>\n<figure id=\"attachment_30208\" aria-describedby=\"caption-attachment-30208\" style=\"width: 300px\" class=\"wp-caption alignright\"><a href=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/James-and-Sacha.jpg\" rel=\"mfp\"><img decoding=\"async\" class=\"size-medium wp-image-30208 lazyload\" title=\"James and Sacha\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/James-and-Sacha-300x199.jpg\" alt=\"James and Sacha\" width=\"300\" height=\"199\" \/><\/a><figcaption id=\"caption-attachment-30208\" class=\"wp-caption-text\">James and Sacha<\/figcaption><\/figure>\n<p style=\"text-align: justify;\">Today, however, I realize just how fortunate we really are. My five year old has unlimited access to insulin, needles, test strips, pumps, and continuous glucose monitors. Yes, we test his blood 13 times each day \u2013 including two or more per night \u2013 but after working for Life for a Child, I realize this is a privilege, not a burden.<\/p>\n<p style=\"text-align: justify;\"><strong><em>You can listen to a <a href=\"http:\/\/soundcloud.com\/luluinlondon\/the-doctor-who-dreamed\" target=\"_blank\">radio documentary<\/a> about the Dream Trust, prepared by Lucy Laycock, a British radio journalist.<\/em><\/strong><\/p>\n<p style=\"text-align: justify;\">\n","protected":false},"excerpt":{"rendered":"<p>There are no funds for blood glucose meters or strips so Dr. Pendsey guesstimates insulin doses by age and weight. Preliminary results from a baseline study led by Drs. Zuijdwijk, Ahmet and Pendsey suggest suggests that average A1Cs are very high.<br \/>\nLFAC supports about 100 of the Dream Trust\u2019s patients, and is always trying to do more. <\/p>\n","protected":false},"author":13,"featured_media":30197,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[1429,1431],"tags":[1246,1245],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.9 (Yoast SEO v22.9) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Understanding Privilege: D-Dad Volunteers for Life for a Child<\/title>\n<meta name=\"description\" content=\"Life for a Child supports over 10,000 kids with type 1 diabetes worldwide, and its resources are stretched paper-thin. Life for a Child partners do the best they can...\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/asweetlife.org\/?p=30189\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"James Ron\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"6 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/asweetlife.org\/?p=30189\",\"url\":\"https:\/\/asweetlife.org\/?p=30189\",\"name\":\"Understanding Privilege: D-Dad Volunteers for Life for a Child\",\"isPartOf\":{\"@id\":\"https:\/\/asweetlife.org\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/asweetlife.org\/?p=30189#primaryimage\"},\"image\":{\"@id\":\"https:\/\/asweetlife.org\/?p=30189#primaryimage\"},\"thumbnailUrl\":\"https:\/\/asweetlife.org\/wp-content\/uploads\/2012\/09\/Diabetes-Clinic.jpg\",\"datePublished\":\"2012-09-04T13:13:21+00:00\",\"dateModified\":\"2016-01-08T12:35:12+00:00\",\"author\":{\"@id\":\"https:\/\/asweetlife.org\/#\/schema\/person\/5c1ac42fe6367ac27a5f31a1c27dd08c\"},\"description\":\"Life for a Child supports over 10,000 kids with type 1 diabetes worldwide, and its resources are stretched paper-thin. 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Until then, James had never heard of the disease. Today, James is a member of the scientific and advisory group of Life for a Child, an Australia-based charity that supplies insulin and other diabetes supplies to children and youth in the developing world. James teaches international affairs and human rights at the University of Minnesota, and lives in Minneapolis with his wife, Emma, and their two children, Tessa and Sacha.\",\"url\":\"https:\/\/asweetlife.org\/?author=13\"}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Understanding Privilege: D-Dad Volunteers for Life for a Child","description":"Life for a Child supports over 10,000 kids with type 1 diabetes worldwide, and its resources are stretched paper-thin. 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