{"id":32202,"date":"2013-03-19T10:20:52","date_gmt":"2013-03-19T14:20:52","guid":{"rendered":"http:\/\/asweetlife.org\/?post_type=feature&#038;p=32202"},"modified":"2016-01-09T03:07:41","modified_gmt":"2016-01-09T08:07:41","slug":"is-diabetes-a-disability","status":"publish","type":"post","link":"https:\/\/asweetlife.org\/?p=32202","title":{"rendered":"Is Diabetes a Disability?"},"content":{"rendered":"<p style=\"text-align: justify;\">\n<p style=\"text-align: justify;\">As I got ready to go to the doctor\u2019s office yesterday, I handed my Milan Marathon registration form to my wife Jess, and asked her to fill it out for me.\u00a0 \u201cThey\u2019ll never be able to read my handwriting,\u201d I said.\u00a0 In order to participate in the marathon I need a certificate of health signed by a sports doctor.\u00a0 It&#8217;s not supposed to be a big deal, but I was stressed about going for a physical exam.<\/p>\n<p style=\"text-align: justify;\">I watched Jess write my basic information on the form.\u00a0 At the end of the page there was a space devoted to \u201cdisability.\u201d\u00a0 Jess looked up.<\/p>\n<p style=\"text-align: justify;\">\u201cDo I write diabetes? Is diabetes a disability?\u201d she asked.\u00a0 She and I both have autoimmune diabetes.<\/p>\n<p style=\"text-align: justify;\">\u201cDon\u2019t write anything.\u201d<\/p>\n<p style=\"text-align: justify;\">We were both thinking the same thing.\u00a0 Diabetes is not a disability.<\/p>\n<p style=\"text-align: justify;\">Or is it?<\/p>\n<p style=\"text-align: justify;\">\u201cWe\u2019ll let the doctor fill that part in,\u201d I said.<\/p>\n<p style=\"text-align: justify;\">That blank line on a simple form shouldn\u2019t have meant anything.\u00a0 It should have come and gone like every other form I\u2019ve ever completed.\u00a0 Instead, it filled my mind with identity questions.\u00a0 I think of myself as diabetic, or a person with diabetes, if you prefer, not as disabled. \u00a0But yet, if my insulin pump were to fall off during a marathon, or if my blood sugar began to plummet, I\u2019d probably be the most disabled guy on the course.<\/p>\n<p style=\"text-align: justify;\">I was nervous on my way to the doctor\u2019s.\u00a0 I questioned whether I\u2019m really healthy and worried the doctor would tell me that I\u2019m not.\u00a0 Maybe he wouldn\u2019t sign the form because of my diabetes. I know plenty of people with type 1 diabetes run marathons and although I myself have run many, I always have a fear that I won\u2019t be allowed in.\u00a0 Or perhaps there will be some official at the starting line who spots my insulin pump and pulls me aside just as the race begins.<\/p>\n<p style=\"text-align: justify;\">In the clinic I filled out a long questionnaire and went in to see to the doctor, a pale, slightly overweight man in his 50s with a very heavy French accent that made his mumbling difficult to understand. The first thing I told him when I walked in was that I needed a certificate signed for the Milano City Marathon. \u00a0Then I said, \u201cI have type 1 diabetes.\u201d\u00a0 It came out more like a declaration than an ordinary sentence.\u00a0\u00a0 The doctor asked me all the usual medical questions and sent me to the next room to test my lung capacity. Next, I ran on a treadmill while hooked up to a heart monitor.\u00a0 For 30 minutes a nurse continuously raised the incline and speed.<\/p>\n<p style=\"text-align: justify;\">When the physical tests were over I returned to the doctor\u2019s office. He looked at my results, mumbling things I couldn\u2019t understand, and then he asked me what I carry with me when I run.<\/p>\n<p style=\"text-align: justify;\">\u201cEnergy gels,\u201d I said.<\/p>\n<p style=\"text-align: justify;\">\u201cYou don\u2019t carry glucagon?\u201d he asked.\u00a0 Finally, he was speaking clearly.<\/p>\n<p style=\"text-align: justify;\">\u201cNo,\u201d I said.\u00a0 Glucagon?\u00a0 Seriously? How the hell would I carry the orange box, along with the glucose meter and gels.\u00a0 And even if I did carry it and passed out, would anyone who found me know what it was or how to use it?<\/p>\n<p style=\"text-align: justify;\">\u201cDo you run with ID of some sort?\u201d the doctor asked.<\/p>\n<p style=\"text-align: justify;\">I understood his question perfectly, but since the honest answer would make me sound very negligent, I said, \u201cExcuse me?\u201d<\/p>\n<p style=\"text-align: justify;\">He repeated the question, adding, \u201cIf something happens to you, how will anyone know you have diabetes?\u201d<\/p>\n<p style=\"text-align: justify;\">I showed him my pump and said, \u201cI have an insulin pump.\u201d<\/p>\n<p style=\"text-align: justify;\">\u201cIt won\u2019t be visible and many people don\u2019t know what it is.\u00a0 They\u2019ll think it\u2019s a pager or a phone.\u00a0 You need ID.\u201d<\/p>\n<p style=\"text-align: justify;\">I shrugged.\u00a0 He was right. What would happen to me in Milan, where I know no one, if I passed out?<\/p>\n<p style=\"text-align: justify;\">The doctor completed the Milano City Marathon health form and I held my breath when he got to the line Jess had left blank. Under the word \u2018disability\u2019 he wrote \u201c<em>Diabetes (DID) Insulin<\/em>\u201d.<\/p>\n<p style=\"text-align: justify;\">Although I was expecting that to happen, I was disappointed to see it written down. I don\u2019t know if my face gave it away or if \u00a0the doctor just understood how it must feel to have that line not left blank. \u00a0He mumbled again. \u00a0This time his words were apologetic.\u00a0 He was sorry he had to write it down.<\/p>\n<p style=\"text-align: justify;\">Before leaving the office, I turned to the doctor and in a pathetic kind of way asked, \u201cI\u2019m healthy, right? Fit to run?\u201d<\/p>\n<p style=\"text-align: justify;\">I don\u2019t know what I was hoping for, or why I even asked.\u00a0 The doctor\u2019s reaction was not very reassuring.\u00a0 He replied with a weak,\u201cyes.\u201d<\/p>\n<p style=\"text-align: justify;\">At home I sent the form to the marathon organizers \u00a0\u00a0I also ordered medical ID from, <a href=\"http:\/\/www.roadid.com\/Common\/default.aspx\" target=\"_blank\" rel=\"nofollow\">roadid.com<\/a>. \u00a0I chose an ankle ID, which can also be used for a timing chip, and dog tags. (I decided I wouldn\u2019t feel comfortable with the bracelet.) \u00a0\u00a0Though I\u2019d been to the road ID site many times before, and had even designed my ID. \u00a0I\u2019d never gone through with ordering it.<\/p>\n<p style=\"text-align: justify;\">But now I\u2019ve done it.\u00a0 I\u2019ve done the safe and responsible thing. Surprisingly, it doesn\u2019t feel bad. \u00a0I don&#8217;t feel as though I&#8217;ve just labeled myself disabled.<\/p>\n<p style=\"text-align: justify;\">I know I can and will run the Milano City Marathon, but I also know that I will continue to feel like someone escaping under the radar.\u00a0 I\u2019m a person with an invisible disability.\u00a0 No matter what you call it, it\u2019s always there.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>That blank line on a simple form shouldn\u2019t have meant anything.  It should have come and gone like every other form I\u2019ve ever completed.  Instead, it filled my mind with identity questions.  I think of myself as diabetic, or a person with diabetes, if you prefer, not as disabled.  But yet, if my insulin pump were to fall off during a marathon, or if my blood sugar began to plummet, I\u2019d probably be the most disabled guy on the course.<\/p>\n","protected":false},"author":2,"featured_media":41790,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[1456],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.9 (Yoast SEO v22.9) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Is Diabetes a Disability?<\/title>\n<meta name=\"description\" content=\"I watched Jess write my basic information on the form. 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