{"id":36908,"date":"2014-10-17T06:44:10","date_gmt":"2014-10-17T10:44:10","guid":{"rendered":"http:\/\/asweetlife.org\/?p=36908"},"modified":"2015-12-27T15:43:06","modified_gmt":"2015-12-27T20:43:06","slug":"tell-the-fda-what-its-like-to-have-diabetes","status":"publish","type":"post","link":"https:\/\/asweetlife.org\/?p=36908","title":{"rendered":"Your Chance to Tell the FDA What It&#8217;s Like to Have Diabetes"},"content":{"rendered":"<p style=\"text-align: justify;\">It&#8217;s easy to criticize the FDA &#8212; people with diabetes do it all the time. Why are devices often approved\/cleared in Europe several years before we get access to them in America? Why are there no officially approved ways to get CGM data on your smart phone? Why are there so few drugs approved for Type 1?<\/p>\n<p style=\"text-align: justify;\"><a href=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-Logo-1.png\" rel=\"mfp\"><img decoding=\"async\" class=\"aligncenter size-full wp-image-36911 lazyload\" title=\"FDA Logo\" src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-Logo-1.png\" alt=\"\" width=\"330\" height=\"154\" data-sizes=\"auto\" data-srcset=\"https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-Logo-1.png 330w, https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-Logo-300x140.png 300w\" sizes=\"(max-width: 330px) 100vw, 330px\" \/><\/a><\/p>\n<p style=\"text-align: justify;\">So I&#8217;m very happy to report on an upcoming event being organized by FDA that, from a patient&#8217;s perspective, is impossible not to praise: on November 3rd from 1-4 EST, the FDA is hosting a panel discussion between top FDA officials and representatives from the patient community, including people from JDRF, the American Diabetes Association, and diaTribe. The goal is to help open lines of communication between regulators and patient representatives, so that both sides can work together to make life with diabetes easier and safer for everyone.\u00a0<\/p>\n<p style=\"text-align: justify;\">It&#8217;s a truly innovative event, and it comes on the heels of another first for the FDA: a live-chat about glucose monitors, which <a href=\"https:\/\/asweetlife.org\/catherine\/blogs\/diabetes-advocacy\/diabetes-and-the-fda-a-first-ever-live-chat\/35626\/\" target=\"_blank\">I wrote about back in March<\/a>, between Bennet Dunlap (the man behind StripSafely.com), and the FDA&#8217;s Courtney Lias and Helene Clayton-Jeter. Registration for this latest webcast should be up soon, and you can follow the conversation in the meantime using the Twitter hashtag #DOCAsksFDA (DOC is short for diabetes online community).<\/p>\n<p style=\"text-align: justify;\">But in the meantime, make yourself heard! Ten people in a room can&#8217;t possibly represent everyone with diabetes, no matter how hard they try &#8212; which is why the organizers have put together a quick survey to hear from as many people with diabetes as possible. The hope is that the responses they get will help shape both this particular event and the conversation going forward. So if you have Type 1 or Type 2 diabetes (or heck, any other form!), please take a minute and <a href=\"https:\/\/www.research.net\/s\/7FTH69P\" target=\"_blank\">take this survey!<\/a>\u00a0It&#8217;s your chance to tell the FDA directly how diabetes affects your life, and what you hope the future might hold. (And do it now: the survey closes early next week.)\u00a0<\/p>\n<p style=\"text-align: justify;\">Also, while I&#8217;m making suggestions, please\u00a0<a href=\"https:\/\/www.habitbrands.com\/Causes\/c1888_a-sweet-life\" target=\"_blank\">get your Marjorie shirt already<\/a>. All the cool kids have one. (Or at least the cool kids with diabetes.)<\/p>\n<p style=\"text-align: justify;\">Thank you.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>t&#8217;s easy to criticize the FDA &#8212; people with diabetes do it all the time. Why are devices often approved\/cleared in Europe several years before we get access to them in America? Why are there no officially approved ways to get CGM data on your smart phone? Why are there so few drugs approved for Type 1?<\/p>\n","protected":false},"author":9,"featured_media":36915,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[1501],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.9 (Yoast SEO v22.9) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Your Chance to Tell the FDA What It&#039;s Like to Have Diabetes<\/title>\n<meta name=\"description\" content=\"It&#039;s easy to criticize the FDA -- people with diabetes do it all the time. Why are devices often approved\/cleared in Europe several years before we get access to them in America?\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/asweetlife.org\/?p=36908\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Catherine Price\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/asweetlife.org\/?p=36908\",\"url\":\"https:\/\/asweetlife.org\/?p=36908\",\"name\":\"Your Chance to Tell the FDA What It's Like to Have Diabetes\",\"isPartOf\":{\"@id\":\"https:\/\/asweetlife.org\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/asweetlife.org\/?p=36908#primaryimage\"},\"image\":{\"@id\":\"https:\/\/asweetlife.org\/?p=36908#primaryimage\"},\"thumbnailUrl\":\"https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-large-logo.jpg\",\"datePublished\":\"2014-10-17T10:44:10+00:00\",\"dateModified\":\"2015-12-27T20:43:06+00:00\",\"author\":{\"@id\":\"https:\/\/asweetlife.org\/#\/schema\/person\/f16ebb52b0d6b1882336149c48618b74\"},\"description\":\"It's easy to criticize the FDA -- people with diabetes do it all the time. Why are devices often approved\/cleared in Europe several years before we get access to them in America?\",\"breadcrumb\":{\"@id\":\"https:\/\/asweetlife.org\/?p=36908#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/asweetlife.org\/?p=36908\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/asweetlife.org\/?p=36908#primaryimage\",\"url\":\"https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-large-logo.jpg\",\"contentUrl\":\"https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-large-logo.jpg\",\"width\":600,\"height\":400,\"caption\":\"FDA large logo\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/asweetlife.org\/?p=36908#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/asweetlife.org\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Your Chance to Tell the FDA What It&#8217;s Like to Have Diabetes\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/asweetlife.org\/#website\",\"url\":\"https:\/\/asweetlife.org\/\",\"name\":\"ASweetLife\",\"description\":\"The Diabetes Magazine\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/asweetlife.org\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"en-US\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/asweetlife.org\/#\/schema\/person\/f16ebb52b0d6b1882336149c48618b74\",\"name\":\"Catherine Price\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/asweetlife.org\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/991f86d105bb54022be9be587aa788fa?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/991f86d105bb54022be9be587aa788fa?s=96&d=mm&r=g\",\"caption\":\"Catherine Price\"},\"description\":\"Catherine Price was diagnosed with Type 1 diabetes when she was 22 years old. She has written for publications including The Best American Science Catherine Price is a professional journalist who was diagnosed with Type 1 diabetes when she was 22 years old. Her work has been featured in publications including The Best American Science Writing, The New York Times, Popular Science, The Los Angeles Times, The San Francisco Chronicle, The Washington Post Magazine, Salon, Slate, Men\u2019s Journal, Health Magazine, The Oprah Magazine, and Outside, among others. A graduate of Yale and UC Berkeley\u2019s Graduate School of Journalism\",\"url\":\"https:\/\/asweetlife.org\/?author=9\"}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Your Chance to Tell the FDA What It's Like to Have Diabetes","description":"It's easy to criticize the FDA -- people with diabetes do it all the time. Why are devices often approved\/cleared in Europe several years before we get access to them in America?","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/asweetlife.org\/?p=36908","twitter_misc":{"Written by":"Catherine Price","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/asweetlife.org\/?p=36908","url":"https:\/\/asweetlife.org\/?p=36908","name":"Your Chance to Tell the FDA What It's Like to Have Diabetes","isPartOf":{"@id":"https:\/\/asweetlife.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/asweetlife.org\/?p=36908#primaryimage"},"image":{"@id":"https:\/\/asweetlife.org\/?p=36908#primaryimage"},"thumbnailUrl":"https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-large-logo.jpg","datePublished":"2014-10-17T10:44:10+00:00","dateModified":"2015-12-27T20:43:06+00:00","author":{"@id":"https:\/\/asweetlife.org\/#\/schema\/person\/f16ebb52b0d6b1882336149c48618b74"},"description":"It's easy to criticize the FDA -- people with diabetes do it all the time. Why are devices often approved\/cleared in Europe several years before we get access to them in America?","breadcrumb":{"@id":"https:\/\/asweetlife.org\/?p=36908#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/asweetlife.org\/?p=36908"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/asweetlife.org\/?p=36908#primaryimage","url":"https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-large-logo.jpg","contentUrl":"https:\/\/asweetlife.org\/wp-content\/uploads\/2014\/10\/FDA-large-logo.jpg","width":600,"height":400,"caption":"FDA large logo"},{"@type":"BreadcrumbList","@id":"https:\/\/asweetlife.org\/?p=36908#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/asweetlife.org\/"},{"@type":"ListItem","position":2,"name":"Your Chance to Tell the FDA What It&#8217;s Like to Have Diabetes"}]},{"@type":"WebSite","@id":"https:\/\/asweetlife.org\/#website","url":"https:\/\/asweetlife.org\/","name":"ASweetLife","description":"The Diabetes Magazine","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/asweetlife.org\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"en-US"},{"@type":"Person","@id":"https:\/\/asweetlife.org\/#\/schema\/person\/f16ebb52b0d6b1882336149c48618b74","name":"Catherine Price","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/asweetlife.org\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/991f86d105bb54022be9be587aa788fa?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/991f86d105bb54022be9be587aa788fa?s=96&d=mm&r=g","caption":"Catherine Price"},"description":"Catherine Price was diagnosed with Type 1 diabetes when she was 22 years old. She has written for publications including The Best American Science Catherine Price is a professional journalist who was diagnosed with Type 1 diabetes when she was 22 years old. Her work has been featured in publications including The Best American Science Writing, The New York Times, Popular Science, The Los Angeles Times, The San Francisco Chronicle, The Washington Post Magazine, Salon, Slate, Men\u2019s Journal, Health Magazine, The Oprah Magazine, and Outside, among others. A graduate of Yale and UC Berkeley\u2019s Graduate School of Journalism","url":"https:\/\/asweetlife.org\/?author=9"}]}},"_links":{"self":[{"href":"https:\/\/asweetlife.org\/index.php?rest_route=\/wp\/v2\/posts\/36908"}],"collection":[{"href":"https:\/\/asweetlife.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/asweetlife.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/asweetlife.org\/index.php?rest_route=\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/asweetlife.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=36908"}],"version-history":[{"count":0,"href":"https:\/\/asweetlife.org\/index.php?rest_route=\/wp\/v2\/posts\/36908\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/asweetlife.org\/index.php?rest_route=\/wp\/v2\/media\/36915"}],"wp:attachment":[{"href":"https:\/\/asweetlife.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=36908"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/asweetlife.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=36908"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/asweetlife.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=36908"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}