{"id":37682,"date":"2015-03-12T06:16:41","date_gmt":"2015-03-12T10:16:41","guid":{"rendered":"http:\/\/asweetlife.org\/?post_type=feature&p=37682"},"modified":"2016-01-11T08:12:17","modified_gmt":"2016-01-11T13:12:17","slug":"when-type-1-diabetes-is-too-much-for-a-child-to-bear-part-2","status":"publish","type":"post","link":"https:\/\/asweetlife.org\/?p=37682","title":{"rendered":"When Type 1 Diabetes is Too Much for a Child to Bear: Part 2"},"content":{"rendered":"

Editor’s note:<\/strong><\/em> \u00a0In December 2014, ASweetLife published this essay<\/a> by a parent whose child with Type 1 diabetes and celiac disease had been admitted to a pediatric psychiatric hospital. He had become suicidal. \u00a0The following essay is a continuation of his story.<\/em><\/strong><\/p>\n

After just under a week in a psychiatric hospital last fall, Finn* was discharged. The hospitalization had begun after I got a call from his school one chilly morning.<\/p>\n

Finn had told the school psychologist he was planning to hurt himself. This, just three hours after he\u2019d cheerfully, chattily trotted off to school with a pumpkin in his arms. Of course it wasn\u2019t that simple. He\u2019d been struggling with anxiety and depression since his diabetes diagnosis in 2011 and subsequent diagnosis with celiac disease, but he had (and continues to have) a dream team of pediatric mental health providers. He\u2019d actually been to see his psychologist the day before. Everything was just so normal, and then\u2014out of the blue\u2014not.<\/p>\n

I was bewildered when the school psychologist told me she was on hold with the children\u2019s psychiatric hospital\u2019s emergency department. Was she overreacting? Having a slow semester, and looking for excitement? For the next few hours, phone calls and meetings came at us in increasingly rapid succession: the hospital needs your insurance card number\u2014Finn\u2019s psychologist saying yes, go to the hospital\u2014cancel lunch date\u2014call husband at work, I think you need to come right away\u2014a clipboard with many blank pages to fill\u2014Dexcom LOW alert; can you eat these Smarties?\u2014someone to tell Finn\u2019s brother where we are\u2014a social worker\u2019s assessment: suicidal ideation\u2014we need to page our endocrinologist, the doctor here doesn\u2019t know what Lantus is\u2014a different nurse with a health history form and a tongue rin<\/em>g\u2026 It was like somersaulting down a hill after failing to gauge its pitch. We tumbled along until finally landing in an antechamber of the psych hospital\u2019s inpatient unit where Finn was asked to sign a document, voluntarily committing himself. And then silence. Our child is suicidal.<\/p>\n

In the hospital, each day is planned out in half-hour blocks. Take a shower\/get dressed time, breakfast time, quiet reading time, art therapy, clean up time, lunch time, group therapy, movie time\u2026each day is plotted out on a table, like the schedule of activities they slide under your door while you sleep on a cruise ship. But the hospital\u2019s activities are not optional. Doing them, doing them all<\/em>, and doing them all with sincerity<\/em>, is how a patient earns privileges (a turn with the shoebox of Lego, or a ticket to the unit\u2019s movie night) and progresses toward being discharged.<\/p>\n

Finn\u2019s dad and I were not surprised that he was an A+ patient. He was motivated to get out as quickly as he could. But we were surprised that he seemed to relish<\/em> some aspects of being hospitalized. For example, he loved the occupational therapy room, which had what he described as a hammock chair that zippered closed, creating a plush cocoon. We thought he would be traumatized by living among the other patients: several had to be physically restrained, one wailed continuously, one dressed exclusively in a Transformers costume and screamed if he was referred to as anything other than Hot Rod. But Finn was not traumatized. Instead, he enjoyed being in group therapy, and bowling with a girl who had expertise in setting up the wobbly, hollow plastic bowling pins. By the end of his stay, there was no big revelation. But it was obvious he was more worn down by living with chronic illness than we\u2019d known, and was desperate for a break.<\/p>\n

The hospital provided Finn with that break, not from chronic illness, but from being different. Diabetes camp is often celebrated for offering kids exactly this\u2014much needed relief from being different. Although in the hospital, he was the lone patient with Type 1 diabetes, he was by far the most regular kid on the unit. So even though he had to get an injection before each meal, he was surrounded by kids who had much more cumbersome treatments. And, who knows? Perhaps he served the same role for someone else, who might have been thinking, \u201cI might be restrained by a man wearing forearm protectors because I bit him this morning, but at least I can eat lunch without getting a shot.\u201d<\/p>\n

On the day we picked Finn up to come home, he was wearing his Marjorie the Dog T-shirt, ragged Friends for Life bracelet, and shoes held closed with Duck tape. His hair had the style that can only be achieved by going to bed with wet hair and a rubber pillow. He was a living caricature of a psychiatric patient with Type 1 diabetes.<\/p>\n

We were eager to reintegrate him to life on the outside. But first: new shoes. Upon admission, the hospital had removed the laces from Finn\u2019s sneakers, and a nurse had taped them closed. Upon discharge, the laces were returned to us in a plastic bag. Once home, I prepared to re-lace the shoes, but when I ripped the Duck tape off, the tongues were marked with gluey black residue. I put the sneakers into the trash. My husband thought perhaps we should save them in case Finn had to be readmitted to the hospital while his feet were still a size six. I rearranged the trash so a drippy rotisserie chicken carcass was on top. I tucked the bag of shoelaces under the wet chicken too. I didn\u2019t want any souvenirs.<\/p>\n

As with a hospital discharge after Finn\u2019s Type 1 diagnosis, the psychiatric hospital experience came with its own set of foreign, yet urgent, instructions. In both cases, our hospitals presented a summary of these on a laminated 8 \u00bd x 11\u201d card, along with the suggestion that we apply this to our fridge with a magnet. On the psychiatric hospital\u2019s instruction card, in place of the familiar hypoglycemic (shivering, sweating) stick man is that stick man\u2019s brother, slumped over under a rain cloud. Instead of fill-in-the-blanks for blood glucose numbers and grams of carboyhdrates to consume, or units of insulin to take, there are fill-in-the-blanks for \u201cThings I can do when I want to hurt myself.\u201d Pat my dog. Take a shower. Hug someone. Listen to music.<\/em><\/p>\n

Could it really be that simple? The psychiatric hospital is behind us, and I can\u2019t stop comparing the post-crisis phase we\u2019re currently in to the post-crisis phase we found ourselves in three years ago, with a diabetic child we suddenly had to learn to keep alive. The feeling of holy shit; we don\u2019t know how to do <\/em>this is very familiar. And this time around, the gist is familiar too: make it up as you go along, know who to call for help, and, as time passes, acclimate to feeling afraid until the fear feels normal. A pocket-sized fear, portable and easy to conceal.<\/p>\n

Our family\u2019s life has returned to normal, or at the very least, normal-ish. Finn has been back home for four months now: attending school, going sledding, and playing video games with his friends. He is not embarrassed by the hospitalization and speaks openly about it to anyone that asks, probably more openly than advised. Before he returned to school, his psychologist helped him plan how to handle the inevitable questions: Some kids won\u2019t know quite what a psychiatric hospital is, and unfortunately they might tease you.<\/em> You can just say, \u201cI was in the hospital, and I\u2019m better now.\u201d <\/em>My heart lurched when Finn told me one classmate had heard where he\u2019d been and asked, \u201cSo, are you crazy?\u201d But Finn just thought that classmate was confused. I told him, no, not crazy, just really depressed. <\/em>He didn\u2019t feel hurt, embarrassed, or insulted, and didn\u2019t understand why I thought he might.<\/p>\n

Hospitalization meant missing a lot of school. During that time, Finn fell behind. He came back in the middle of a unit on volcanoes, and knew nothing about volcanoes. He was lost. His teachers were tentative when he first returned. We all thought it was stressful enough for him just to be<\/em> in school, and that pressure to catch up would make things worse. Only now, after acclimating for an entire quarter, is he once again being held accountable for knowing the three branches of government or their, they\u2019re<\/em>, and there<\/em>, or even for remembering to bring a pencil to class.<\/p>\n

Today, Finn says he is fine. Happy, even. But there are glum times. They are short-lived, the kind of thing I would assume, in anyone else, is a passing mood. And these moods are often concurrent with wacky blood glucose. Does that make a bleak feeling less real? If I just want to sleep forever<\/em> disappears with normoglycemia, is it less worrisome? Finn seems to think so. I just felt that way because I was low,<\/em> he\u2019ll say or I only said that because I felt mad about something stupid because I was high.<\/em><\/p>\n

During the first days after hospital discharge, we were on tenterhooks\u2014continuously watching, and sure to always know where Finn was in the house and how he was feeling. When he\u2019d go upstairs to play with Lego, one of us would go upstairs too, under the guise of needing to clean the bathroom or fold laundry. When he made plans with friends, we\u2019d finagle things so the friend would come to our house. We didn\u2019t want to let Finn out of our sight. After a few weeks, he requested that we stop treating him like he is sick and to recognize that he is okay now. His psychologist agreed with him, and suggested we trust him to tell us if he is in danger. But still, when he is sitting on a sofa, reading a book or watching Tobuscus on his iPad, I often sit beside him and press my cheek to his cheek, as if suicidality might express itself as a fever. And he\u2019ll move his face away to look me in the eye and smile: I’m fine.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

The hospital provided Finn with that break, not from chronic illness, but from being different. Diabetes camp is often celebrated for offering kids exactly this\u2014much needed relief from being different. Although in the hospital, he was the lone patient with Type 1 diabetes, he was by far the most regular kid on the unit. So even though he had to get an injection before each meal, he was surrounded by kids who had much more cumbersome treatments. <\/p>\n","protected":false},"author":128,"featured_media":37683,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"image","meta":{"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[1460],"tags":[],"yoast_head":"\nWhen Type 1 Diabetes is Too Much for a Child to Bear: Part 2<\/title>\n<meta name=\"description\" content=\"Finn told the school psychologist he was planning to hurt himself.arms. 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