I was diagnosed with type 1 diabetes this past March (see here for my diagnosis story). After weeks of poring through websites, hours of talking with my family, and what seems like way too much contemplation, I decided to give my diabetes over to the hands of clinical research. I am still working through the angry period of my diagnosis, but I remain ever faithful that life will go on—and abundantly. So, about a week ago, I packed up my car with all of my earthly belongings and drove from Austin, Texas, to Seattle, Washington, to enroll in the Macrogenics-sponsored Protégé Encore study. I completed various questionnaires and interviews through email, phone, and fax, I flew up here for a final screening two weekends ago, and I was finally able to begin the study last Friday. I never would have guessed that, at age 27, I would be moving my formerly-care-free life across the country to be involved in a trial for type 1 diabetes, but here I am, IV pole in hand. I arrived in Seattle late Wednesday night, went climbing on Thursday, and then lay in a hospital bed for most of Friday. Oh, life.
This blog is a place where I hope to answer questions about the study, shed light on what it means to be a part of research, and generally expand on the ups and downs of my diabetes. When I was first diagnosed two months ago, I immediately began searching for other young-ish adults who were recently diagnosed and came back with very little company. If you’re out there reading this, then I want to know you. And I want you to know that we’re in this together. I want to share my experiences in this study with the hope that it may be helpful to you.
Here is the link for the trial itself: http://www.protegediabetes.org/
And here’s hoping that more of us can bind together.