Not So Good Results

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After returning home from a short trip to New York last month, I got a cold or virus of some sort and my heart rate went completely out of control. On one of my runs my HR monitor indicated I ran for miles with a heart rate of over 200.  At one point it actually showed a reading of 249. This, I know, is absolutely impossible, but it made me worry enough to go to the doctor. My doctor sent me to get a bunch of tests done including a stress test and some blood tests.

Worried that these tests may interfere with my marathon plans, and since my heart rate seemed to be getting back to normal after a couple weeks and a change of the HR belt (I took strap from my old Garmin 305 forerunner), I decided to put off all the tests until after the marathon.

So on Monday, still high from my marathon results, I went to do the blood test that I had been putting off.  The tests included a TSH test to see if the abnormal heart rate was connected to my thyroid gland. Apparently this is a standard test for people with type 1 diabetes, but somehow I never had it tested.

My blood sugar was high that morning (250 – another problem to deal with) so I wasn’t surprised when my FBG result of 251 came in. I was happy to find out my thyroid gland was fine. I was also happy to see my cholesterol was good thanks to my medication – LDL 73.2, Non HDL 87 and HDL 84.6.  This morning after coming back from a 4 mile run I checked to see if any more results had come in. They had, and among them was the one result I was dreading – my HbA1c.

For the past few months I’ve been having a very hard time keeping my blood sugar under control, especially during the night. I had been sick a couple times, but that wasn’t it. I haven’t changed my diet and my running has been steady for months.  No matter what I do 4 out of 5 mornings I wake up over 150 (many times in the 180-250 zone). I’ve tried to increase my basal Lantus dose but find myself going low during the day, especially when I run.

So I should have been prepared for another disappointing result but somehow I never am. Last time I tested, I was very disappointed with an HbA1c of 6.8%. But today was worse.   My HbA1c is back up to 7%. I know that this is considered normal for diabetics by many doctors but to me it’s a step backwards and a sort of a confirmation that I have a real problem with my blood sugar control.

I didn’t really need the blood test to tell me that I was having a problem since I check myself often enough to know. My numbers are fine during the day and since I follow a low carb paleo diet this makes sense. But I don’t understand what happens when I go to sleep and I really don’t know what to do about it. It seems that if I go to sleep low, I hypo in my sleep, and wake up high and feeling like I’ve been hit by a train.  If I go to sleep a little high, I wake up much higher. The Lantus dose doesn’t seem to help.

All of this has left me frustrated and a little desperate. I’m not really sure what to do. My endo seems to think I need a pump (and a CGM which my insurance won’t pay for). I just don’t know.

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Jane Kokernak
9 years ago

When I took Lantus, which I liked, I found that I had to switch the time of day I took the injection, from morning to bedtime, because it was only last for me for 21 or so hours, not the promised 24, so I was high in the mornings. Anyway, you might try fooling around with that Lantus dose time before you feel as if the pump is your only option.

Catherine Price
9 years ago

Yes, my insurance will pay for a pump. And I am moving in that direction. I have not surrendered yet but may be on the way.

Michelle S.
Michelle S.
9 years ago

Does your insurance pay for the pump?  I have tried the CGM but don’t use it anymore because it isn’t covered.  however i find that with very frequent testing and the pump I am able to acheive steady sugars…. I know you have written before about your reasons for not wanting to wear the pump.  But i heard a good quote from someone recently when I gave a talk about managing emotions and diabetes…. he said we have to “surrender to win” when it comes to wearing the pump.  I thought that was well put.  There is no doubt it helps to… Read more »

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