Throwing Cold Water on the ALS Ice Bucket Challenge

I’m trying to not be cynical about the ALS dump ice water on your head thing going on lately, but I’m failing.

I think perhaps I’m failing because having diabetes at times makes me more suspicious about how people help other people. It makes me question whether the help people are offering is indicative of self-sacrifice and borne of a genuine desire to improve the lives of people less fortunate, or whether it’s really self serving and self indulgent.

“What the difference? As long as it raises money and awareness, it’s positive,” some might say.

And I say that that is a really cynical view of things.

To throw a dollar at a problem thinking that, because of that dollar you’ve done your part and can go on your way guilt-free, doesn’t really help solve the problem. More typically, it makes the people contributing those dollars feel better about themselves. Then, in the long run, the continued, invested, long-term support that is required over decades to successfully fund research into combating a deadly medical condition is weakened and the disease continues to harm or kill people.

The ALS Ice Bucket Challenge takes this already existing conundrum of generating support and attention and amps it up to a place never seen before.

The ALS Ice Bucket challenge works like this: a person is challenged by another person to either donate to ALS or pour a bucket of ice water over their head. And, while that sounds downright silly, between July 29 and August 26 the Challenge raised $88.5 million.

According to the ALS Association, as many as 30,000 people in the United States have ALS, otherwise known as Lou Gehrig’s Disease.

Meanwhile, 29.1 million people in the U.S. have diabetes and in 2012 approximately $35 million was raised for research.

But, while that is clearly out of whack, it’s not the numbers and the dollars that have me cynical. It’s the rationale behind the fundraising.

The Ice Bucket Challenge has become a cash cow phenomenon because of social media. It became popular because people want other people to see them pouring ice water on themselves, preferably on youtube. It became popular because of the inherent narcissism of people who want to be seen by other people as acting charitable. Where were those people before? More crucially, once those people have had their fill of being charitable and feeling self important about their contribution to helping their fellow man, where will they be afterward?

In other words: Are the people who are pouring ice water over their heads to raise money for ALS a cadre of generous people who can be counted on to contribute and work to help alleviate the suffering of people in the future? Can they be counted to help people suffering from other diseases?

My guess is they won’t do anything to help anyone if they’re not being noticed and lauded and rewarded with a sense of increased smugness for their public efforts in undertaking a stunt to help find a cure for …. whatever.

“But,” some might say, “it raises awareness of the disease.”

Sure. But, as my friend Doug Stanhope, says, that’s no real help either.

“Raising awareness is me standing next to a drainage ditch where a guy just hit a goat with his moped on the highway,” Stanhope says in a bit from his latest comedy special. “And now they’re in the ditch, laying in the muck with compound fractures. And the dude’s got a bone sticking through his leg and the fucking goat has a bone sticking through his fur. They’re both laying there, in agony, and I’m raising awareness by standing above them shouting down an empty highway, ‘Look! Look! Ewwww! Look!’ And they’re going, ‘No, help!’ No, no, no. “Look!’ It’s way easier to just go, ‘Look!’

Alex O’Meara
Alex O’Meara

Alex was diagnosed with type 1 diabetes 36 years ago. Since then he has run six marathons – the first when we was 15 – and the latest a few years ago. In 2006 Alex underwent islet cell transplant and was, for some time, insulin independent. He now lives in Southeastern Arizona where he is working on a novel, teaching college English, pursuing a Master’s degree, and training to run his first 50 mile race.

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frank
frank
10 years ago

It’s closer to 21 millions gallons. This is the official figure from the Dept of Water Conservation. Enough water to raise the level of Lake Erie by one foot! All gone, dumped on the floor/ground.

Holly Jones
Holly Jones
10 years ago

While I do understand the gist of the points you made they make you sound more jealous than insightful.  So every dollar you have ever given was only to causes that you are wholly invested in and then give hours of your time to? I’ll bet not.  I give to the children doing car washes for their church camp but will never go to their church, I give to the Boys Club in my area but I have only girls.  I give to March of Dimes because I have a younger brother and a cousin both born under 1.5 pounds… Read more »

Rico
Rico
10 years ago

@Lisa – “Grow up”? REALLY? Perhaps you, like so many others, are ignorant of the reality (keyword) concerning this much-lauded effort to raise FUNDS (not “awareness”, which actually does nothing to solve the problem) for research to find a cure for a terrible disease. The parameters of the challenge are thus: If elected to participate by one of your peers, you must EITHER pour a bucket of ice water over your head, OR make a donation to the ALS Association. You have 24 hours to do so. Video of the ritual is then published on social media as documentation for… Read more »

Rico
Rico
10 years ago

@Ronin – To put the waste this campaign has caused into simple terms, let’s just assume everyone is using a five gallon bucket. Now multiply that number by the more than 1.2 million videos shared on Facebook since June 1. Based on that assumption (5 x 1,200,000), over 6 million gallons of water have been poured out in the name of Lou Gehrig’s Disease. The average American household uses 320 gallons per day, which means that based on this estimation, nearly 19,000 homes’ daily water usage has been wasted. And that’s not even taking into account that videos posted online… Read more »

Lisa
10 years ago

Grow up. If you want people to contribute to any cause you have to get their attention, give them a feeling of involvement and ask them to contribute. It really doesn’t matter what source you use to accomplish those three tasks. ALS is a good cause. Juvenile Diabetes is a good cause. Breast cancer is a good cause. The list of good causes is endless. It just hangs on what are you willing to do to get people involved in your cause. Stop hating. If you want your piece of the pie, figure out how to make other people feel… Read more »

Ronin
Ronin
10 years ago

Where did the 6 million gallons number come from?  No where in this article was there a number of folks who have dumped instead of donating.

Rico
Rico
10 years ago

The most ironic part of this whole thing is that, in a time of worldwide drought, over 6 MILLION gallons of clean drinkable water (estimate based on an average of 5 gallons per participant) has been dumped out onto the ground by people who failed to grasp the original intention of the “challenge”, which was to either donate money for ALS research OR ELSE suffer the indignity of an icy cold shower. The reality is that a few opportunistic celebs got the whole concept “bass-ackwards” early on in an obviously self-serving attempt to portray themselves to the public as “philanthropists”… Read more »

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