CGM Hiatus

After using a CGM for two straight years, I wondered what it would be like to take an extended break from one. I never really committed to the idea, until I had no choice. 

I’ve been CGM-free for almost two months now. I found out back in April that sensors for the Dexcom Seven are no longer available. Immediately, I thought this meant I could get a pretty new CGM (I’ve been eyeing a pink Dexcom G4 for some time now) but alas, it was not so simple. My family’s current insurance coverage won’t cover the cost of a new CGM, and it seems a bit silly to shell out copious amount of money for a device that I’ve gone without for the majority of my life.

Unfortunately, the few extra sensors I had left expired just as I learned of this news. Around my birthday, my supply was no more and I was disconnected.

At first, it was sort of liberating. It felt nice to have a break from the incessant buzzing of the machine. I didn’t have to worry about calibrating it each time I tested my blood sugar or about making sure it was fully charged. Best of all, I didn’t have to deal with it making mistakes, like telling me my blood sugar is 78 and falling rapidly when in reality it was steady at 142.

But a few weeks later, a strong sense of paranoia began to settle in, particularly at nighttime. Before, I was always comforted by the fact that my CGM would wake me up when it (correctly) sensed a low blood sugar. Of course, prior to owning a CGM I never had any major problem waking up automatically when I was low. But the CGM had fostered a sense of security that I got a little too comfortable with, and when I didn’t have it anymore, it made me anxious. So some nights before I go to sleep, I set an alarm on my phone to wake me up around 2 or 3 so I can test to make sure I’m doing okay. More often than not, this alarm isn’t even necessary and just winds up interrupting a peaceful night of sleep.

And I can’t stop dwelling on trend arrows. I find myself thinking about what my blood sugar is doing after meals; subsequently, I get nervous about whether or not my blood sugar is falling or rising rapidly. I miss having a general idea concerning what my body is doing at particular times of the day.

For now, I don’t have a choice but to continue on without my CGM. At least my time without it has made me check my blood sugar more consistently and frequently – a definite improvement. And it’s not like my diabetes management is impossible without it. So I’ll carry on, make use of the resources I do have, and be grateful for progress (and no regression).

Molly Johannes
Molly Johannes

Molly Johannes was diagnosed with type 1 diabetes in 1997 at the age of four. She controls her diabetes with an OmniPod insulin pump, Dexcom continuous glucose monitor, and daily exercise. Molly graduated cum laude from the University of Massachusetts Amherst in December 2014 with a degree in English. Currently, she works fulltime as an associate editor for a financial company. In her spare time, Molly enjoys spending time with her loved ones, reading books, watching movies, and playing games. She’s an avid fan of Disney, dark chocolate, wine, Harry Potter, and fun times. While Molly does not know a life without diabetes, she is determined to defy the daily obstacles the disease presents.

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